Thursday, October 27, 2011

Pray, Hope, Love.

For the last two and a half years, give or take, I have looked back on the day I was given Nicola's diagnosis, and I have often felt like it was about the worst day of my life. My love for my child was never challenged, if anything, it strengthened about a hundred fold in the space of a few words, but with that love came the intense fear.

Fear for my child's future, fear for her well being, for her health, for her safety... fear for her life.

Over the last two years, that fear has slowly subsided and been replaced with a determination that we would not be beaten. We have faced insurmountable battles and we have triumphed, we have challenged the odds and won. Each new victory bought with it a stronger sense of unbeatableness.

Today, I find that feeling of insurmountable unbeatability has not only wavered, but it has been shaken to it's very roots.

Today I was told that my daughter most likely has cancer.

Over the past couple of months she has become more and more irritable and miserable. Over the last two weeks in particular she has started showing signs of bloating and abdominal distention. We saw her paediatrician last Thursday who did some urgent x-rays, suspecting that she had a blockage or impaction in her bowel.

The x-rays showed that there was nothing clearly wrong, so the Doctor ordered an abdominal ultrasound to have a closer look.

The ultrasound today that revealed a rather large mass in her pelvis. The ultrasound report says;

"10.5cm x 9.0cm x 11.0cm solid mass in the pelvis displaying internal vascularity."
They also noted that there is a 2cm solid mass inferior edge of the left lobe of the liver, most likely representative of a node, and solid vascularity material surrounding the gall bladder extending inferior to the liver.

We are scheduled for an MRI tomorrow to find more information but they have told me that she will require surgery regardless because the mass is obstructing the flow of urine into her bladder and her kidneys are moderately obstructed.

We have been told that because of Nicola's over all condition we have been told to assume cancer until they can prove otherwise, which probably won't be until we get to Brisbane and see oncologists for the surgery, and we're not sure when that will be happening, though we believe they are pushing for it to be pretty quick.

All of a sudden I don't feel confident, I don't feel unbeatable, and I certainly don't feel determined or triumphant.

I feel lost, alone and empty. I feel cold and numb.

My baby, my beautiful, sweet, innocent baby, who has already battled through so much, has a monster growing inside her, a horrible, sinister, deadly monster.

I can't fight it. I can't make it go away.

The journey ahead is so intense, and that is just finding out what we are dealing with. At the moment I can't even begin to comprehend dealing with chemo and radiation and all of that.

It all just feels so completely overwhelming, and I can't process it.

All I want is to go to bed, curl up and sleep and wake up with today having never happened.

Instead I will smile and pretend. I will pretend to be strong, I will pretend to be brave. I will pretend that everything is going to be just fine, even though deep down inside my heart is breaking.

I will hide my fears and I will not cry, I will show strength and courage even though I want to run and hide, and beyond all, I will pray, I will hope, and I will love fiercely.

Because other than pray, hope and love, I don't know what else I can do.


Trine said...

Sally asked us to pray for you, if there is a god (because I can't be sure...) - he's busy talking to all of us and hearing about all the love we're sending to you and your family.
I will be thinking of you, I hope to hear some amazing news...
Much love sweetheart,

Jayne said...

I am thinking of you both, and sending many prayers to the universe as well as much love and light xoxoxo

E. said...

Thinking of you .

christylaughs said...

Thank you for sharing your story! YOU ARE STRONG, YOU CAN FIGHT IT!! YOU WILL FIGHT IT!! WE WILL GET RID OF THAT UGLY MONSTER!! MIRACLES HAPPEN EVERY DAY!!! DO NOT FORGET THAT!! Praying!!! I will put your baby girl on our prayer list!

MrsSheppy said...

I know you don't know me well, but you shared your daughter's story with me a couple of weeks ago as you also expressed concern over my daughter's comparably minor neuro issues. I just want you to know that I am so sorry you and Nicola and your entire family are going through this. My prayers are with you all for strength and healing.
-Sarah Shepherd

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